I first saw that picture on Pinterest. I don’t know where it came from or who owns it but it is pretty accurate. I’m 40 years old, but I feel much older than that. I don’t look my age so I hear a lot of “you’re too young to be in pain”. Living with Fibro… what a pain. Literally.
I was first diagnosed in my early 30’s but my symptoms were around for much longer. I have noticed they’ve gotten worse as I’ve gotten older. I think the hardest thing about living with Fibro is getting people to understand how awful you feel.
So what is it like? Well… imagine you’ve been awake for 36 hours. Now imagine you run 30 miles without stopping and then push your car around the block several times. Add having the flu, a hangover, and a sunburn. You’re kinda getting close now. The problem with Fibro is the really extensive list of symptoms that anyone can experience at any time.
Here are the most common:
- Widespread muscle/joint pain
- Brain fog
- Sensitivity in all of the 5 senses
- Insomnia/screwed up sleep patterns
On a good day I wake up exhausted. On a bad day, I wake up feeling like I got hit by a truck the night before. I think anyone fighting this battle will agree the good days are few and far between while the bad days require every ounce of strength to just get out of bed in the morning, never mind going to work and being productive. I have learned, as we all have, to roll with the energy highs and lows. Last night, I fell asleep on the couch at 7:30 and then dragged myself to bed at 8:30. Tonight, maybe 9 or so but I did get a load of laundry done this evening. My sink is currently still full of dirty dishes.
My goal is not be super-mom. I work two jobs, I’m a single mom, my son is autistic, and when you add Fibro to that, well, there’s a whole lot going on in my house. Again, not trying to be super-mom. If I go to bed at night after accomplishing nothing, then so be it. If I manage to get a few things done, then so be it. It is what it is. My house is messy sometimes and I’m ok with that. My son is healthy and happy and that’s all I care about.
In the end, living with Fibro really forces you to prioritize your life. Every day, I wake up and ask myself “What is the most important thing I have to accomplish today?” and focus on that. If I get other stuff done, great. If not, great. Priorities. Priorities. Priorities.
It would be great if people really understood what Fibro does to a person, but the reality is that likely won’t happen. I don’t often talk about my Fibro because it’s so involved and the symptoms vary from day to day, that I would rather spend my time on what’s important: taking care of my son and taking care of myself.
For anyone out there fighting this battle… self care is so important. Whatever it is – massages, naps, warm baths… take care of yourself in any way you need to. Remember – it’s all about priorities.